All Cried Out...

Wednesday Jason and I went to meet my Medical Oncologist in Surrey. The man responsible for planning my chemotherapy treatment. His name is Dr. Al-Tourah and he was the most honest with us then any doctor to date. Unfortunately he said he is not in charge of my entire case and that the man overseeing everything is Dr. Tsu my radiation Oncologist. I didn`t care for Dr. Tsu too much but Jason liked him. My MO (medical Oncologist) layed out the severity of my case and told me that I had not been given a prognosis from previous doctors because they don`t know how to categorize my tumor due to its rarity. A glioblastoma by itself has a prognosis of 1 to 3 years after diagnosis. I have a Oligodendroglioma that mutated into a Glioblastoma therefore making my tumor slightly different then either of the two on their own. He told me that I was tested for a particular cell gene that shows whether chemo works well to kill your cells. I tested positive meaning that my cells will not respond as well to chemotherapy treatment as someone who didn`t have this gene. It is called retention of heterosigosity (gene is 1P19Q) The idea of course is to have chemo treatment as a way to weaken the cells before the radiation strikes it. I will have to take a chemo Temozolomide everyday an hour before my radiation, as well as anti-nausea medication (stronger than gravel).

There wasn`t much else to this appointment. He gave me my prescription for my anti-nausea meds which will be filled along with the temozolomide on the first day of my radiation treatment. BC medical pays for the chemo but not the other medications. I am lucky to live in Canada or I probably would have been dead by now.

Every time I come home from a specialist appointment... I feel off and emotional all day long. Almost as though I just start to wrap my head around all of the information and accept it and then it is all dug up again. I really didn't talk to anyone much on Wednesday after my appointment but the days since then have been better. In any case I am ok now and am all cried out for the time being.